I have always been the one that is “prepared”. Even long before I was a Mom – I would have the bag with everything in it. In my past life I worked at a YMCA working with the school age kids. It was a necessity to have the bag including activities for that “just in case moment”. I find myself training my Daughter to be the same way. As she goes off to babysit – she has her bag of activities.
Of course, like every Mom I had the diaper bag that you still have when they are toddlers filled with activities, clothing, snacks, etc. I was born to be the Girl Scout Leader Mom – now it is not just a bag but a Rubbermaid container full of things. Gotta keep them busy and you never know what you may need.
What does this have to do with having Fibromyalgia?
We all talk about how we have to pack differently when we go on vacations or road trips.
That goes for any activity now.
Our daughter is in a JO Volleyball. This means that we have one day a weekend that we travel for about 1 1/2 hours to get to where the Tournaments are held. We have to be there for an hour before their first game – which is usually behind schedule – and we easily spend 6-7 hours watching games. Then… back on the road for the 1 1/2 drive.
The choice of seating is either metal bleachers or chairs with a short counter top as a table. When we arrive, she takes off to find her team, my husband is usually finding other parents and a spot on the bleachers. I make my way up the 2 flights of stairs with my bags in check.
The search begins; first for the court they will be on – then to find the nearest outlet and the most supportive comfortable chair that I can find. Then it is set up time. I have to “be prepared”. I have chair support, heating pad, extension cords, medication, bio-freeze, water, snacks, back rest, camcorder, etc.
I am prepared ready to handle whatever Fibro and the sidekicks throw my way and yet I feel trapped.
I am not housebound or in a wheel chair. I feel trapped because I have limitations. The limitations are not just physical and mental. I have all of the things needed for me to make it through the day the best way I can which also means I am stuck at my chair unless I can get my husband or someone to watch all of my things.
I believe that I can still do what I want to do but with limitations or plenty of planning.
I am not about to give up or stop going to see my Daughter’s activities. I just have to be more prepared and plan around my “good times” of the day. I have volunteered to help at the Choir Festival. I signed up for the time slot that I would have the most energy and the job that would allow me to sit, stand and walk.
It sounds like a lot of work to keep participating in my Daughter’s activities. There are days when doing so is painful and beyond exhausting.
However, she is one of the reasons that I feel I keep moving, keep exercising, and keep living my life.
There are days that I need to just stay in my comfy chair. She will be the first one to help me when I have pushed to far.
I know that not everyone is able to do what do or will agree with my ending statement which is…
I will continue to be a role model for my Daughter. I want her to fight through adversity with faith and strength. I want her to see that some days you have to take care of yourself first. I want her to see that you can take the worst situation and find some positive. Most importantly I want her to know that her Mom is a….
Fibro Warrior – Living Life