How has Fibromyalgia impacted my daily living?
Alarm; 5:00 a.m. Make breakfast for our Daughter, get ready for work, start working @ 6:30 a.m.
When I awake I am very stiff and in pain level is about a 6 out of 10.
I have to hold onto the hallway walls as I walk to wake our daughter up for school and take my medication & supplements.
I head back to sleep for another 1 1/2 hours.
This time when I wake up my body is not as stiff and the pain level has dropped a bit.
I have to sit down to get dressed and put on my make up.
I go to the local pool and take an Aqua Zumba or other water gym classes.
Most days when I am done swimming I am able to walk at a fairly normal gait and my pain level drops.
It has become difficult to make it through my day if I am unable to swim. I arrive at work at 10:00 a.m.
I would love to go shopping. I would wear fun clothes, usually high heel boots or shoes and a fashionable purse.
I do all of my shopping except groceries online. I look for clothing that is light weight, short or no sleeves, and loose-fitting.
I have a large bag that I carry with me every where I go. Inside my bag I have all of the things that I need to help me if a symptom arises.
It contains my pain medication, lunch time meds, tens unit, ice packs, heating pad, biofreeze, 3 different sun glasses of different shades(photophobia) and a bottle of water.
I would have worked 8-10 hour days and either run errands or go out with friends on a Friday night.
I have FMLA paperwork stating that I can work no more than 7 hours a day.
I have a sun lamp on my desk an ergonomically correct chair and a foot stool under my desk to keep my legs up.
My cell phone has an alarm that goes off to remind me to take my medication.
At the end of the day I am fried and happy to be on my way home.
I don’t run errands or meet with friends after work I go straight home.
I do not have the energy to fix dinners anymore or run our Daughter to all of her sporting practices.
I would make dinner. Play with our daughter and train our dog. I would go to bed by 10:30.
My husband takes care of all of the evening activities including reminding me to take my medication and get to bed on time.
I go to bed at 8:30 & despite the fact that I have Sleep Maintenance disorder I have found the right Sleep Aids & Medications to help me sleep through the night.
I do wake up a few times in the night and have to re-adjust the ice pack or heating pad but I fall asleep immediately.
My weekend’s were filled with watching my daughters sporting events, projects around the house, laundry, cleaning, getting together with friends and going to the movies.
My house is picked up-not clean. My to do lists get transferred because most of the to do’s don’t get done. I don’t get together with my friends. I can’t sit through a movie in the Theater. I sleep between 10-12 hours both Friday & Saturday night. I take naps – I need them. I am exhausted all the time.
If you look hard enough you can find good in anything. I have learned to be more open to change and find the positive spin on things.
I love writing and have found out how to use it to not just help myself but to use it to help advocate. The biggest impact are the people who I have met. I have many wonderful friendships that I owe to Fibromyalgia.
I began blogging in March 2011, http://fibrowarriorslivinglife.com ~ started my own online support group, Facebook page in Sept. 2012. https://www.facebook.com/survivingfibro and write for an Online magazine Living well with Fibromyalgia (subscribe@http://fibromodem.com)
I have made it my mission to tell other Fibromites that they can still live their lives.
I believe through education, positive affirmation & a great support team that I can continue being a
Fibro Warrior ~ Living Life.