Who is Fibro Warriors ~ Living Life?

This was a Fellow Warriors Blog earlier this year; (Such a great write up for us)

Who is Fibro Warriors ~ Living Life?

Melissa Swanson started Fibro Warriors~Living Life Facebook page in September of 2012. In her quest for understanding and supporting fibromyalgia, she joined various online groups and Facebook pages. Quickly she learned how important it is to be able to talk with others who have been there/done that! More importantly, she believes in sharing information from verified credible sources. Fibromyalgia is real. Melissa also believes in the value of surrounding one’s self with positive people in order to create an environment for healthy coping and energy conservation.
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Who is Fibro Warriors ~ Living Life?

My name is Melissa. I am a full-time working married sports mom of a very active 14-year-old daughter and a one-year-old Border Collie.
Throughout my childhood, I experienced many symptoms of fibromyalgia and myofascial pain syndrome. I had muscle knots, leg cramps, and sensitivity to light and touch. I bruise easily suffer from high anxiety, panic attacks, and depression.
In 2009, my family experienced a family loss that led to an emotionally stressful year of traveling. The extraordinary physical work also caused more health issues to develop.
I spent 2010 going from doctor to doctor taking every test. Finally, a thorough exam led to the diagnosis of fibromyalgia and other syndromes/diseases that I call evil sidekicks. This is when I began searching the internet to find others who could help me understand what it was like to live life with fibromyalgia. What I found was—having fibromyalgia is like riding a roller coaster with many unpredictable ups-and-downs.
It is important to be your own health advocate. I have found the combination of keeping a daily routine, using prescription medications, finding helpful supplements, stretching, participating in light warm water exercise, maintaining good sleep hygiene, having a positive attitude, and putting together a good team keeps my pain and my health manageable, most days.
My “Fibro Team” consists of my Rheumatologist, Neurologist, primary care provider, Acupuncturist, Chiropractor, Psychologist, a pain management doctor, and a wonderful, positive support group.
Along my journey, I have made wonderful friends and fellow advocates. One of those is Celeste Cooper. I am proud to call her my friend and mentor. Celeste Cooper, RN, BSN, is an Author, pain patient/advocate and fibromyalgia expert at Sharecare.com and thesethree.com.
Through my networks, I share motivational images, helpful hints, questions, and my own experiences. Celeste brings her medical expertise and experience as a patient, registered nurse, educator, legal nurse consultant, and member of the Pain Action Alliance to Implement a National Strategy. She considers herself a conduit of information by sharing what she learns regarding current studies, associated conditions, and so much more.

Fibro Warriors ~ Living Life strives to help others living life with “Fibromyalgia.”

The key words are “LIVE LIFE”.

We have made it my mission to tell other Fibromites that they can still live their lives.

We believe through education, positive affirmation & a great support team that we can all be a

Fibro Warrior~Living Life
warrior Fibro Warrior ~ Living Life.
Read more @ http://fibrowarriorslivinglife.com. I am a freelance writer for the online magazine, Living Well with Fibromyalgia (subscribe@http://fibromodem.com)

 

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4 thoughts on “Who is Fibro Warriors ~ Living Life?

  1. Melissa – Thank You for sharing your knowledge with us. I was actively doing research on fibromyalgia when it got so bad that I couldn’t function any more. After sorting thru hundreds of cases of fibromyalgia, I have identified what I believe to be the 4 events that must happen in a person’s life for them to get fibromyalgia. It’s just a working theory and holds true for the majority of people with fibromyalgia. There are four key events that must happen in a person’s life for them to get fibromyalgia. If any one of the four events does not happen, the person will most likely NOT get fibromyalgia. May I contact you privately and ask you a few personal questions about the four events? I wish to collect more data while respecting your privacy. Please let me know the best way to contact you in private.

    Over the years I have tried many things for the fibromyalgia pain. Everything from legal drugs to illegal ones, homeopathic remedies, MSN powder, cleanses, flushes, and almost every antidepressant on the market, along with every possible remedy and pain killer. All with poor results. Some of the antidepressants actually made me worse! It got soooo bad that I actually attempted suicide twice in one day! Yea…. You can keep your damn pharmaceutical medicines. I hate them so bad that I would rather sit in a corner under suicide watch by my friends than take those damn drugs ever again!!!! YES – They are that bad.

    Don’t get me wrong. I’m not turning my back on Western medicine. It has provided me with a few medicines that work pretty good at controlling the ongoing nausea and vomiting: Famotadine at night so I don’t throw up in my sleep, and Pepcid tablets to dissolve in my mouth to calm down my stomach during the day. And when the nausea gets so bad that I can’t keep down the pills I have Promethagan suppositories which help, but after 3-4 days of throwing up I’m dehydrated to the point that I have to be hospitalized for a day or two while they replenish my fluids. I’ve been taken to the hospital via ambulance 4 times in the past year. I’m getting real tired of this crap.

    I was working with a research facility to develop a strain of marijuana that posses almost zero THC, and has a high CBD and CBN levels. What that means (in non-botanist terms) is the plant contains THC, CBD, CBN, CBC, CBG and many other medicinal properties. Each one of these compounds contribute a different effect to the marijuana. For obvious reasons I have stopped working with the research facility because the marijuana laws here in Las Vegas are just way too strict. I was about to start work with a group in Europe who is developing a zero THC plant with high CBD and CBN levels, but this is just too much personal liability. I’m not going to jail over a freakin’ plant! I’ll move to Colorado or California where I can continue my research without risk of prison.

    Below are brief descriptions of each compound and what they contribute:

    Delta-9-Tetrahydrocannabinol or (THC) is a psychoactive cannabinoid responsible for many of the effects experienced by the cannabis user.

    Mild to moderate pain relief, relaxation, insomnia and appetite stimulation.
    THC has been demonstrated to have anti-depressant effects.
    The majority of strains range from 12-21% THC with very potent and carefully
    prepared strains reaching even higher.
    Average THC potency is about 16-17% in Northern CA.
    Recent research that suggests patients with a pre-disposition to schizophrenia
    and anxiety disorders should avoid high-THC cannabis.

    Cannabidiol or (CBD) occurs in many strains, at low levels, 4% CBD) include Sour Tsunami, Harlequin and Cannatonic.

    It can provide relief for chronic pain due to muscle spasticity, convulsions and
    inflammation. Offering relief for patients with MS, Fibromyalgia and Epilepsy.
    Some researchers feel it provides effective relief from anxiety-related disorders.
    CBD has also been shown to inhibit cancer cell growth when injected into breast
    and brain tumors in combination with THC.

    Cannabinol or (CBN) is an oxidative degradation product of THC. It may result from improper storage or curing and extensive processing, such as when making concentrates. It is usually formed when THC is exposed to UV light and oxygen over time. When making concentrates (which I believe will be the future) it’s imperative that it be done in a zero oxygen / zero UV light environment. I have seen a few companies making concentrates, but their potency will diminish quickly over time due to the light and oxygen. The marijuana growers will over-come this obstacle easily by processing the plants in a Nitrogen filled environment with zero UV light. Here’s is what the compound CBN contributes:

    CBN has some psychoactive properties, about 10% of the strength of THC.
    CBN is thought by researchers to enhance the dizziness and disorientation users
    of cannabis may experience.
    It may cause feelings of grogginess and has been shown to reduce heart rate.

    Cannabichromene or (CBC) is a rare, non-psychoactive cannabinoid, usually found at low levels (<1%) when present.

    Research conducted has shown CBC has anti-depressant effects,
    10x those of CBD.
    CBC has also been shown to improve the pain-relieving effects of THC.
    Studies have demonstrated that CBC has sedative effects, promoting relaxation.

    Cannabigerol or (CBG) is a non-psychoactive cannabinoid. It is commonly found in cannabis. CBG-acid is the precursor to both THC-acid and CBD-acid in the plant usually found at low levels (<1%) when present.

    Researchers have demonstrated both pain relieving and inflammation
    reducing effects.
    CBG reduces intraocular pressure, associated with glaucoma.
    CBG has been shown to have antibiotic properties and to
    inhibit platelet aggregation, which slows the rate of blood clotting.

    I look forward to returning to my research on fibromyalgia and pain relief.
    I have already shared some of my findings with growers here in the United States. They were amazed when I showed them a process to naturally increase the THC / CBD / CBN levels AFTER THE PLANT HAS BEEN HARVESTED.

    YES – I can take a dead and harvested plant and naturally increase it's potency.
    This process will be in high demand everywhere marijuana is grown.

    YES – I have a proven method for naturally increasing the potency of a harvested dead plant!!!! The growers were sooooo impressed they tried to give me a couple pounds of their crop. I respectfully declined because interstate transport of narcotics carries a huge penalty that I'm not willing to pay. Thanks for the offer guys. I will start accepting gifts as soon as I move to a state where the marijuana laws are more relaxed. I'm thinking about Half Moon Bay or Santa Cruz. I like the mentality of the people there. They actually say "Hi" to you when you walk down the street.

    I look forward to when I can continue my research on fibromyalgia and not be in fear of imprisonment.

    I look forward to working with growers to develop a strain of marijuana specifically for fibromyalgia pain relief. I'm going to call the strain: fibromyalgia relief just so everybody will now what this strain is used for. The fibromyalgia relief will then be harvested, put thru my process to increase it's potency, then converted to a liquid concentrate which is stored in a zero oxygen, zero UV light environment. The concentrate can then be added to food, drinks, and can even be taken orally in drop form. Smoking of the marijuana is not necessary when it can be ingested orally.

    Wow – that was a lot of information to share. I hope you will use it to educate others. When I can continue my research, I'll gladly share my findings with you to share with the fellow Fibro Warriors.

    Let me know the best way to contact you. I really want to find out if you had all 4 events happen in your life and which order they happened, and want to do it in a way that will respect your privacy. I will gladly share my working theories with you.

    Let me know……

    With Love,
    Guy Arbuthnot

    1. Guy,
      Wow!
      You are right, that was a lot of information.
      My email is the best way to reach me.
      swansonmjs@gmail.com
      Thank you for your comment and all of the research you have done on behalf of Fibromites.
      Wishing you sun-filled days and rest filled nights.

  2. Melissa – I forgot that you are a freelance writer for the online magazine, Living Well with Fibromyalgia. Would you like to publish my research findings and working theories in Living Well With fibromyalgia??

  3. Melissa – Here is a key point I forgot to mention regarding taking narcotic pain killers (Hydrocodone, Oxycodone, Dilaudid, Morphine….) It’s called muscle memory confusion. It’s effectively used by body builders and trainers, so I implemented this same process into my pain management and it’s proven to work.

    If you take pain killers every day your body will build up a tolerance to them QUICKLY. For this reason, I truly take them as needed and when needed. If I’m not in a lot of pain that day, I don’t take any. I believe that by doing so, this confuses the body since it’s getting varied amounts of medicine, on various days, and at various times. Because of this muscle confusion I have been able to stay off the real strong narcotics and their side effects for quite a while.

    For 7 years I treated the pain using only NORCO – Hydrocodone/Acetaminophen (10/350). It was not until 3-4 years ago that I had to upgrade to the Oxycodone, Dilaudid, and Morphine. Because once you start upgrading to stronger narcotics, this starts a progression that can not be stopped – Only delayed.

    For a few years this pain pill worked till you build up a tolerance to it. Now it is not effective and you have to upgrade to the next stronger one. And a few years later you’ll get to upgrade to an even stronger narcotic. This process will repeat (if you let it) over and over again till you are on such strong narcotics that you can’t function properly. You’ll be too wacked out of your head on narcotics to do so. Then you’ll have no short-term memory which will then effect your long term memory – You won’t have one.

    So basically you’ll be stoned out of your mind on pain killers and won’t remember what happened yesterday / last week / last month. Drug induced memory loss also causes your memories to be stored (and retrieved) out of sequence. Gheee….. That’s something to look forward too.

    On a side note: If you are taking any medicine with Acetaminophen in it, Make sure you do NOT exceed it’s maximum daily dosage. The current maximum recommended adult dose of acetaminophen is 4,000 milligrams per day which I personally think is too much for the human body. My doctor is more comfortable keeping the acetaminophen maximum dosing to under 3000mg per day. My liver and kidneys can not handle this level and they start to hurt when I take this much.

    This is why my doctor changed my prescription to (10/350) instead of the (10/500). By lowering the acetaminophen dosing to 350mg, this allows me to take larger quantities on days when the pain is real bad without reaching my toxicity level. I suggest you do the same to protect your liver and kidneys.

    Muscle confusion is an excellent way of keeping the pain pills working.

    I shared this process with my new doctor and he was impressed. He said he will start telling his pain patients to try it and see how it works for them. I hope you will do the same.

    OK – I need to go rest. I haven’t been able to sleep for a couple of days now, the pain and nausea has been that bad. Looking forward to a much needed 12 to 18 hour nap.

    With Love,
    Guy Arbuthnot
    aka: Creation Walker
    aka: The Sax Man of Las Vegas
    aka: Fibro Warrior

Looking forward to hearing your comments!

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