Fibro Info You Should Know: Day 1
May 12th was chosen to be Fibromyalgia Awareness Month because it is Florence Nightingale’s birthday and she had fibromyalgia.
Fibro Info You Should Know: Day 2
Reports of illnesses with strikingly similar symptoms can be found as far back as around 1500 BC.
The earliest description of a fibromyalgia-like condition is found in the Biblical account of Job’s physical anguish. “I, too, have been assigned months of futility, long and weary nights of misery. When I go to bed, I think, `When will it be morning?’ But the night drags on, and I toss till dawn…And now my heart is broken. Depression haunts my days. My weary nights are filled with pain as though something were relentlessly gnawing at my bones.” (Job 7:3-4 and 30:16-17 – NLT)
Fibro Info You Should Know: Day 3
What is Fibromyalgia: For Starters ~ IT IS REAL!
Definition: Fibromyalgia syndrome is a common and chronic disorder characterized by widespread pain, diffuse tenderness, and a number of other symptoms. The word “fibromyalgia” comes from the Latin term for fibrous tissue (fibro) and the Greek ones for muscle (myo) and pain (algia).
Fibro Info You Should Know: Day 4
It took hundreds of years but FINALLY there is a test that can tell if you have Fibromyalgia. Most insurances will pay for it. https://fmcfstriggerpoints.blogspot.com/2016/06/the-fma-blood-test-how-to-and-my-results.html#.WQth9lUrK1s
#fibrowarriorslivinglife #stopseefibromyalgia #fmatest
Fibro Info You Should Know: Day 5
Fibromyalgia can happen to anyone.
It is does not discriminate. In the United States, approximately 20 million Americans (6%) are afflicted with FM. While it occurs most often in women (80% women – 20% men), FM also strikes men and children of all ethnic backgrounds. I personally have friends that can recall having the pain as early as 4 years old. Unfortunately I know too many young teens trying to get through the drama of middle school & high school.
Fibro Info You Should Know: Day 6
Fibromyalgia likes to bring friends.
There are over 100 “evil sidekicks” or co-existing syndromes.
I have currently been diagnosed with 19 “evil sidekicks” in addition to fibromyalgia.
Fibro Info You Should Know: Day 7
There is no cure for fibromyalgia.
There are prescription meds, supplement, and integrative therapies that have been helpful in treating the symptoms of fibromyalgia and it’s “evil sidekicks” or coexisting syndromes/diseases.
Fibro Info you Should Know: Day 8
Dr. Liptan is someone you should know if you have fibromyalgia.
#stopseefibromyalgia #fibrowarriorslivinglife #drliptan
Fibro Info You Should Know: Day 9
*Not one fibromite is the same
*No one”gets” Fibro for the same reason
*No one has the exact same co-existing conditions/diseases
*Not all medications, supplements & integrative therapies work for everyone.
*Treatments that were working will all of a sudden no longer work.
*No one can predict if they are going to have a good or a bad day.
*We might be able to do something today but the same thing could throw us into a terrible flare the next day.
*One this is for certain; We are always in pain, we are always tired and our health is unpredictable.
Fibro Info You Should Know: Day 10
“Patients with fibromyalgia do not become crippled with the condition, nor is there any evidence it affects their lifespan.
Nevertheless, due to varying levels of pain and fatigue, there is an inevitable contraction of social, vocational, and avocational activities that leads to a reduced quality of life. As with many chronic diseases, the extent to which patients succumb to the various effects of pain and fatigue are dependent upon numerous factors, in particular their psycho-social support, financial status, childhood experiences, sense of humor, and determination to push on.” ~ fibroandpain.org
Fibro Info You Should Know: Day 11
It is common for more than one family member to have fibromyalgia but does this mean it is genetic?
Most experts believe fibro is related to a genetic predisposition which means that certain genes increase the risk of a person developing fibromyalgia. Research is ongoing to try to learn which genes are responsible for predisposing.
Fibro Info You Should Know; Day 12
Today is International Fibromyalgia Awareness Day
I chose to share more feeling and less fact today. I did not chose to have this illness. I did nothing to cause it to happen. Life just happened and here I am. I am not going to sugar coat it. It sucks. It is one thing to be in pain every day 24/7, to be so fatigued you actually can’t think, to deal with the anxiety and depression you face when you are always in pain. However, the worse thing is it is a thief. It steals you of time with your family and friends. It steals the time your daughter should be chatting with friends instead of cleaning your house because you can’t physically do it. I can list so many more things but then it would not be a Fibro Warriors ~ Living Life motto. I have a new family around the world and it has opened up so many opportunities for me to help others. I do what I can when I can with the help of others. Please take the day to share with someone else why we are wearing purple today.
Fibro Info You Should Know; Day 13
Don’t believe everything you read. Find credible sources.
Easier said than done, right? I do not know all of the facts; can’t keep up with the advances in medicine or the laws trying to be passed that can harm us. This is why I am an advocate with the National Fibromyalgia and Chronic Pain Association fibroandpain.org. This is why I am friends with people like Celeste Cooper and Tami Stackelhouse. This is why I follow pages like US Pain Foundation and ProHealth. This is why I read books from Dr. Liptan and many more. I am simply a voice to spread awareness and education. BE A VOICE! BE YOUR OWN ADVOCATE!
Fibro Info You Should Know: Day 14
High Direct and Indirect Costs
The significant HRU and costs associated with FM in the US, France, and Germany documented in this study highlight the substantial global economic burden of FM. Knight et. Al.
Several studies have examined the direct (medical care) and indirect (productivity loss, changes in employment status, disability, family assistance) costs of fibromyalgia. FM patients see a doctor on average about once a month and are hospitalized once every three years. The mean direct annual cost per patient ranges from about $2,000 to over $10,000 a year depending on severity. People with severe FM (65% in one study) averaged over $10,000 a year in direct medical costs.
Most of the costs due to fibromyalgia, however, are caused by indirect costs due to lost productivity and disability. The complete indirect costs of FM are rarely accounted for (an insurance company study indicated that FM cost companies $57-$143 in indirect costs for every dollar they spent on medical claims) but one study suggested that the indirect costs for a severely ill FM patient average over $30,000 a year. Throw the indirect and direct costs together and you have a staggering $40,000 plus bill year in and year out for the severely ill.
Fibromyalgia may impose a greater burden than some other chronic illnesses. Studies indicate that the burden of illness FM imposes is comparable that found in diseases such as osteoarthritis, rheumatoid arthritis (RA) and diabetes. FM’s direct medical costs – which account for substantially lower losses than the indirect (productivity) costs – are similar to those found in rheumatoid arthritis. In fact, people with FM visit emergency rooms, have more doctor visits and engage in physical therapy to a great extent that people with RA. Since FM is at least three times and may be six times as common as RA it likely imposes from three to six times as great a societal burden as RA.https://www.healthrising.org/forums/threads/the-high-cost-of-fibromyalgia.2973/
Fibro Info You Should Know: Day 15
My second worst “evil sidekick” is Chronic fatigue syndrome, CFS, or SEID. It is a common condition with Fibromites.
It is a debilitating and complex disorder characterized by profound fatigue that is not improved by bed rest and that may be worsened by physical or mental activity. Symptoms affect several body systems and may include weakness, muscle pain, impaired memory and/or mental concentration, and insomnia, which can result in reduced participation in daily activities.
Fibro Info You Should Know: Day 16
Have you heard of Fibromyalgia Health Coaches or Advisors?
Thanks to Tami Stackelhouse I am among the many that exist and are ready to help you.
What is a Fibromyalgia Advisor or Coach?
A Fibromyalgia Coach is someone who is trained to provide support specifically for fibromyalgia patients. It’s a bit of a cross between health coaching and life coaching, with a focus entirely on helping clients live as well as possible with fibromyalgia.
Fibro Info You Should Know: Day 17
Exercise is a very important part of fibromyalgia treatment.
I know that when I first heard this I said, “Yeah, right. I am in so much pain and you want me to move.” The truth of the matter is we need to keep moving. I do not suggest you sign up for “The Biggest Loser” class like I did a few years ago. Not smart. I do suggest and it has been proven that water exercise, yoga, tai chi, walking and gentle stretches help those of us in chronic pain. The key word is BALANCE. #fibromyalgiaawareness #fibrowarriorslivinglife
Fibro Info You Should Know: Day 18
There are many approaches to treating fibromyalgia and the “evil sidekicks”.
Check out this article by Celeste Cooper https://www.healthcentral.com/article/alternative-and-complementary-medicine-combating-chronic-pain
Fibro Info You Should Know: Day 19
You can never get enough facts: Check out this article ~ 10 Fast Fibromyalgia Facts;
Fibro Info You Should Know: Day 20
The Difference Between Fibromyalgia Tender Points and Myofascial Trigger Points by Celeste Cooper
Fibro Info You Should Know: Day 21
Fibro Info You Should Know: Day 22
Sleep; Should be a 4 letter word. Do I sleep? Yes…How? Meds that put me to sleep and Meds that keep me asleep. Am I ever rested? No… I am always tired. I was diagnosed with sleep maint. disorder. I recommend to all my clients that they have a sleep study done to really know what is going on. Attached is a great article; https://fmcfstriggerpoints.blogspot.com/2013/08/the-mystery-of-sleep-in-fibromyalgia.html
Fibro Info You Should Know: Day 23
Books from credible sources are a MUST!
Attached is my GO TO list; http://astore.amazon.com/fibwarlivlif-20
Fibro Info You Should Know: Day 24
Journaling is so important for a multitude of reasons. I use it to track my pain, emotions, medication, to problem solve and explore possibilities.
Fibro Info You Should Know: Day 25
I slept 20 out of the past 22 hours today. Still tired but much better than I was last night. I am going to sleep soon – Thankfully only one more day of work this week. CFS/ME/SEID… whatever you call it.. It SUCKS being so darn tired all the time.
Chronic fatigue syndrome has eight official signs and symptoms, plus the central symptom that gives the condition its name:
Loss of memory or concentration
Enlarged lymph nodes in your neck or armpits
Unexplained muscle pain
Pain that moves from one joint to another without swelling or redness
Headache of a new type, pattern or severity
Extreme exhaustion lasting more than 24 hours after physical or mental exercise
Fibro Info You Should Know: Day 26
There are going to be days when you have to let your body win.
My SEID, ME, CFS or whatever you want to call it nowadays finally beat me. I’ve pushed myself for too many weeks. I slept 32 out of 36 hours with no sleep aids. That was Wednesday night thru Thursday night. I am lucky I didn’t push myself into a fibro flare. I also know better. I plan on taking it easy the next 3 days. Don’t push yourself. Be kind to you.
Fibro Info You Should Know: Day 27
According to the National Fibromyalgia & Chronic Pain Association about 20% of people with fibromyalgia (FM) have a co-existing depression or anxiety state that needs to be appropriately treated with therapeutic doses of antidepressants or anti-anxiety drugs, often in conjunction with the help of a clinical psychologist or psychiatrist. Basically, people who have a concomitant psychiatric problem have a double burden to bear. They will find it easier to cope with their FM if the psychiatric condition is appropriately treated. It is important to understand that fibromyalgia itself is not a psychogenic pain problem, and that treatment of any underlying psychological problems does not cure FM.
Fibro Info You Should Know: Day 28
Several studies in the past few years indicate that fibromyalgia symptoms may arise from mitochondrial dysfunction.
Fibro You Should Know: Day 29
Weather truly does affect our bodies. http://fibrowarriorslivinglife.com/…/04/29/hows-the-weather/
Fibro Info You Should Know: Day 30
There are many different tools that can help alleviate pain. Here is my review of Oska Pulse. My results have been amazing.
Fibro Info You Should Know: Day 31
There are so many great bloggers out there.
I will be continue to add to the list but here is a start;