Gaga for Lady

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Mallory Shamim is a young, enthusiastic woman who has lived with fibromyalgia, chronic pain, and chronic migraines for the last three years. She puts a positive spin on her life as a chronic pain patient and wants to help others feel better about their prognoses. Mallory is on her way to becoming a wonderful advocate. Check out her blog at Chronically Invisible

Written in G ♯ minor and at 120 beats per minute, the synthetic sound that rocks with pop beats became instantly recognizable. There she appears in a one strap black latex jumpsuit, glistening as she emerges from the water wearing a mask that looks as if it has been made from a dlady-gaga-poker-face-tablet.jpg.b2bd67a4fd3f952f0f8dab0968f8a80bisco ball. There she is in all her glory – beautiful, eccentric, bold. Since that first image of her, I have been a fan of this extraordinary woman.

Lady Gaga, who has since been named, Mother Monster by her followers, has never apologized for being outlandish. She is known for being provocative and unconventional in her ways of entertaining, hello remember the Meat Dress? She is also known for being completely open about her life and past and experiences.

But, Stefani Joanne Angelina Germanotta has been in the news as of late not for her music, but for revealing she suffers from chronic pain and fibromyalgia.

This week alone this mega icon has canceled her European lag of her tour and posted her pain. Not many people are open about their private lives and for any person who suffers from anything, being open to the public critique and ridicule makes speaking out harder than just being mute, putting on a smile, and saying “Everything is fine.”

So why is her canceling her tour, coming out as suffering from Fibromyalgia, and promoting a documentary about her life behind the lights of stardom entitled “Lady Gaga: Five Foot Two,” news?

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Lady Gaga’s public admittance is bringing this disorder that is estimated to affect more than 100 million people* to the forefront. I believe her coming out and being truthful about the chronic pain she lives with is starting the conversation that hasn’t always happened. If a star as huge as Lady Gaga has chronic pain and fibromyalgia, then it solidifies that it is real because she is perfect, has a perfect life, and can’t possibly be faking it. Right? She’s never lied to her fans or the public about any aspect of her life, trauma, and beliefs so why would she make this up?

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“I use the word suffer not only because trauma and chronic pain have changed my life, but because they are keeping me from living a normal life.” ~ Lady Gaga

Her documentary is being looked at by some as potentially a negative based on how she portrays herself and chronic pain. Some people are saying they’re scared of how this will portray chronic pain because she, as a celebrity, has access to treatments and medication that those of who aren’t millionaires don’t have. I am sure she is with the best doctors and using the best “treatments” available because she does have the money, but I think speaking out about it is more of a win than whatever she shows us in her documentary. The words “chronic pain,” and “fibromyalgia” are now on the radar of millions of people thanks to her. I’m sure some of her fans who have never heard of fibromyalgia looked it up, are trying to understand it, and maybe even finding people they never knew who suffered are suffering all simply because she put it out in the universe.

I might not be saying it from a microphone to millions of people at once but I have a voice. I do not shy away from talking about what I have, what I “suffer” with. And, like Gaga says in her statement posted today:

 I use the word “suffer” not for pity, or attention, and have been disappointed to see people online suggest that I’m being dramatic, making this up, or playing the victim to get out of touring. If you knew me, you would know this couldn’t be further from the truth. I’m a fighter.   

To me Lady Gaga brings hope for awareness, understanding, and acceptance. She shows that a celebrity, a world-wide icon at the end of the day, struggles with the same issues you and I do. She is more than the woman we see in her extravagant videos or on stage doing amazing choreography in heels that most of us couldn’t even stand in for a second. She. Is. Human.

  • “Living with pain” U.S. Pain Foundation. Sideless Box Design Co. 18 Sept. 2017.

Read more of Mallory’s posts;

This past Sunday I attended the 4th Annual Midwest Pain Treatment Education Expo.

The first I heard about this event was this past May from my fellow advocate & friend Sara Willy. Sara is the MN/WI Ambassador for US Pain Foundation & the Vice President of the GGPAIN Foundation. I honestly did not know anything about Sara’s work with the GG Pain Foundation.

After surfing the web this is what I found ~

Gracie Gean is a chronic pain patient diagnosed with Complex Regional Pain Syndrome, also known as Reflex Sympathetic Dystrophy, Occipital Neuralgia, Spinal Stenosis, Spondylosis, and Degenerative Disc Disease. She also discovered that she has Lyme Disease.

“Gracie Bagosy-Young is an International Chronic Pain Advocate. She is the owner of Gracie Gean Chronic Pain Advocacy & Consulting. Gracie hosts the Midwest Pain Treatment Education Expo, which is the largest in the US. She speaks on chronic pain Nationally.”

“The Expo was born out of Gracie’s frustration with the lack of resources available to patients in the Midwest.” “The goal of this event is to help you become better educated regarding treatments, how to utilize your voice with advocacy efforts and help you find local support.”

The first year the expo was held had 80 attendees. Now 4 years later, the event had 300 attendees and over 9,000 registered to stream live.

This year the Expo was held in Northbrook, Illinois (near Chicago) presented by OSKA Wellness.

I have had an opportunity to try a lot of different pain relief devices and by far have had the greatest success using the Oska Pulse. I was excited to find out that Oska Wellness folks were going to be at the expo. READ my review on Oska Pulse.

This years event included 7 speakers & 30 different vendors/booths. View a list of speakers, sponsors and vendors at GGChronicPainAdvocacy/Events.

The expo was amazing. It is always great to be surrounded by those who understand your struggles. I have been to events where it is very hard to get time to speak with the vendors or the speakers and that was not the case.

I had an opportunity to try Kangen Water® I was totally shocked to see what is in the bottle water that I drink and thought was a healthy choice.

I used the AVACEN 100.

Although I live in a state that has not approved medical cannabis I was happy to receive information offered through Illinois to share with my support group members.

I met an amazing Manual Therapist Azlaan from Advance Sports Therapy located in Naperville, Il. He was offering wet cupping sessions and I signed up. It was great. He took his time to explain what was going to happen and as it was happening. I felt so relaxed after having that partial session and recommend him to anyone.

Mary Biancalana, Owner and Director of Therapy for Chicago Center for Myofascial Pain (Relief) who I had heard give a prensentation at the TAP Chronic Pain Conference in Washington, D.C. was there educating the attendee’s on trigger point therapy.

We need more events like this to educate the pain community and give them a chance to meet qualified people in their community. Please check out the great work that Gracie is doing to help those of us living with chronic pain illnesses. Videos from the event will be posted over the next few weeks.
WWW.GGPAINFOUNDATION.ORG