Take my clothes – please …. Living with Fibromyalgia and Allodynia

Imagine your worst sunburn. How did it feel when you had to put on your shirt? or have someone touch you?

It is something that I experience every day.

What causes me to feel like my nerves are trying to jump out of my skin?

Allodynia is believed to be a hypersensitivity to stimuli that would normally not cause pain. The pain can be provoked by a light touch to the skin, pressure from clothing, showering, combing or brushing your hair. Even a light breeze blowing across your skin can feel like agony. Allodynia is considered to be the result of a process called central sensitization. The pain comes from a malfunction of specialized nerves, called nociceptors. These nociceptors sense information about things like temperature and painful stimuli right at the skin.. Any sensation felt by the skin becomes painful. Two types of allodynia are tactile allodynia, which is pain caused by touch and mechanical allodynia, which is caused by movement across the skin.

The warmer I am the more my skin stings and burns, then anything touching my skin or a light breeze can send me in a frenzy,

Not only is my skin painful to the touch but my clothes cause daily pain.

I choose what I wear every day based on the level of the feeling. Clothing can cause pain all over your body. Most days my arms, hands and thighs are only affected. Today, my entire body feels like I am being attacked by pins and needles.

Other times I describe areas as feeling numb or tingly.

Most days at work you will find me wearing short loose sleeve shirts or tank top style blouses. They type of fabric plays a big part. I am more likely to look at the style of the blouse. The least amount of clothing and lightest touching is the best.

I have had to change the style of socks and shoes that I wear. If I have to wear socks I wear the shortest softest lightest ones I can find.

Everyday the minute I get home from work the shoes and socks are the first to go. I have a very loose soft pair of slippers that I put on then I change out of my work clothes and put on crop length loose pj bottoms and a very loose short sleeve top. On weekends I have light weight crop workout pants, a soft loose sports bra and a shirt that barely touches my skin at all.

Don’t even get me started on clothing tags.

CRM. A new fibromyalgia symptom?

Originally published on www.ProHealth.com • October 22, 2016

medicineCRM. A new fibromyalgia symptom?

Well, not really. But maybe.
I know I live with CRM.

Wonder what CRM is?

Let me tell you:

Can’t Remember Meds.

Even though it’s only a matter of hours after missing my medicine that my body begins to let me know, I often forget my meds. With that lapse in memory, I start experiencing body aches, fatigue (more than usual), and headache, sometimes leading to a fever-like feeling and cold sweats. It still surprises me and I think I’m coming down with the flu, but then I’m hit with the ah-ha moment: “I forgot to take my medication.” Then it takes at least 2 dosages before I feel my “normal.”

CRM. It is ridiculous. It is completely unavoidable. Just take the medication. Right?

It isn’t always that easy. Life happens. Any form of interruption in my schedule can lead to me either taking medication late or not at all. The first thing I do every day when I wake is to take my morning dosage; my phone alarm goes off at 7:00 p.m. everyday to remind me to take my evening dosage.

If anything messes with my routine such as oversleeping, vacations, etc., I am likely to forget. In the evening if I’m busy writing, the phone rings, laundry, etc., instead of hitting the snooze alarm, I will hit the dismiss button on my phone and remember an hour later.

I’ve tried many different methods to remember to take my meds and am currently using PillSuite, a seven-compartment sorter.

Here’s how it works:

Step 1: Sort your pills (AM or PM) into the seven compartments of the sorter.

Step 2: Place one of the plastic packets over the funnel on the sorter. Tip the sorter sideways and the pills will flow easily into the plastic packets. Label the packet.

Step 3: Finally, use the sealer to seal the pill packet closed and you are done!

I don’t enjoy sorting my meds. It takes me approx. 20-30 minutes to sort 2 weeks worth of meds/vitamins. I’ve gotten lazy and do not label the pill packets which means I really don’t have any way of knowing if I have taken them or not.

There is a very easy fix to this dilemma. I can label the pill packet with the date or start using the plastic daily medicine boxes that are clearly marked by the day and am/pm.

We are creatures of habit. It is important to take medications at the same time everyday.

Tie taking your medication with a daily activity such as breakfast, brushing your teeth or going to bed.

Keep them where you will see them (out of sight – out of mind).

When you take them, visualize yourself taking the medication.

Use a calendar and place a mark on the day after you have taken your medicine.

Place post-it notes or reminders where you are certain to see them such as by your toothbrush, nightstand, car keys, etc.

Ask a family member or a friend to give you a reminder call.

Find a sorting system that works for you.

Avoid the cheap pill boxes. They usually have flimsy lids and clasps that break or wear out after a few months.

Try different ways of reminding yourself to take the medicine and keeping track that you have taken them.

Keep a backup dose of meds on hand in case you forget to take them after you’ve left the house or if you’re going to be out past medicine time.

I’ve now been using the PillSuite system for over a month, and I am so happy that I was given the opportunity to try this product. I have officially tossed the plastic containers and plan on continuing to use PillSuite.

I would love to hear how you remember to take your medicine.

Disclosure: I received the PillSuite system as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.