Gaga for Lady

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Mallory Shamim is a young, enthusiastic woman who has lived with fibromyalgia, chronic pain, and chronic migraines for the last three years. She puts a positive spin on her life as a chronic pain patient and wants to help others feel better about their prognoses. Mallory is on her way to becoming a wonderful advocate. Check out her blog at Chronically Invisible

Written in G ♯ minor and at 120 beats per minute, the synthetic sound that rocks with pop beats became instantly recognizable. There she appears in a one strap black latex jumpsuit, glistening as she emerges from the water wearing a mask that looks as if it has been made from a dlady-gaga-poker-face-tablet.jpg.b2bd67a4fd3f952f0f8dab0968f8a80bisco ball. There she is in all her glory – beautiful, eccentric, bold. Since that first image of her, I have been a fan of this extraordinary woman.

Lady Gaga, who has since been named, Mother Monster by her followers, has never apologized for being outlandish. She is known for being provocative and unconventional in her ways of entertaining, hello remember the Meat Dress? She is also known for being completely open about her life and past and experiences.

But, Stefani Joanne Angelina Germanotta has been in the news as of late not for her music, but for revealing she suffers from chronic pain and fibromyalgia.

This week alone this mega icon has canceled her European lag of her tour and posted her pain. Not many people are open about their private lives and for any person who suffers from anything, being open to the public critique and ridicule makes speaking out harder than just being mute, putting on a smile, and saying “Everything is fine.”

So why is her canceling her tour, coming out as suffering from Fibromyalgia, and promoting a documentary about her life behind the lights of stardom entitled “Lady Gaga: Five Foot Two,” news?

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Lady Gaga’s public admittance is bringing this disorder that is estimated to affect more than 100 million people* to the forefront. I believe her coming out and being truthful about the chronic pain she lives with is starting the conversation that hasn’t always happened. If a star as huge as Lady Gaga has chronic pain and fibromyalgia, then it solidifies that it is real because she is perfect, has a perfect life, and can’t possibly be faking it. Right? She’s never lied to her fans or the public about any aspect of her life, trauma, and beliefs so why would she make this up?

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“I use the word suffer not only because trauma and chronic pain have changed my life, but because they are keeping me from living a normal life.” ~ Lady Gaga

Her documentary is being looked at by some as potentially a negative based on how she portrays herself and chronic pain. Some people are saying they’re scared of how this will portray chronic pain because she, as a celebrity, has access to treatments and medication that those of who aren’t millionaires don’t have. I am sure she is with the best doctors and using the best “treatments” available because she does have the money, but I think speaking out about it is more of a win than whatever she shows us in her documentary. The words “chronic pain,” and “fibromyalgia” are now on the radar of millions of people thanks to her. I’m sure some of her fans who have never heard of fibromyalgia looked it up, are trying to understand it, and maybe even finding people they never knew who suffered are suffering all simply because she put it out in the universe.

I might not be saying it from a microphone to millions of people at once but I have a voice. I do not shy away from talking about what I have, what I “suffer” with. And, like Gaga says in her statement posted today:

 I use the word “suffer” not for pity, or attention, and have been disappointed to see people online suggest that I’m being dramatic, making this up, or playing the victim to get out of touring. If you knew me, you would know this couldn’t be further from the truth. I’m a fighter.   

To me Lady Gaga brings hope for awareness, understanding, and acceptance. She shows that a celebrity, a world-wide icon at the end of the day, struggles with the same issues you and I do. She is more than the woman we see in her extravagant videos or on stage doing amazing choreography in heels that most of us couldn’t even stand in for a second. She. Is. Human.

  • “Living with pain” U.S. Pain Foundation. Sideless Box Design Co. 18 Sept. 2017.

Read more of Mallory’s posts;

Confessions of a fatigued fibromite.

What have you done due to fatigue?

I was posting things I have done because of fatigue/”fibro fog”. After sharing my stories others began to share theirs. I saw myself in everyone of their stories. I know it makes me feel better to know that I am not alone.

MY CONFESSIONS

I stood in front of my office door pushing the button on my key wondering why it was not opening my door. It took longer than I care to admit for me to realize that I had been clicking my car remote door opener.

I told my daughter to meet me at the bank. I got there and texted her telling her that I was there waiting for her. She called asking where I was. She had gone to a different bank in town. I was positive that she was at the wrong bank. In fact, she even drove over to the bank I was at meanwhile I had told the lady at the bank that my daughter was late because she had gone to the wrong bank. She arrived and we handed the teller the information for her to make the deposit. You guessed it. She didn’t have an account there. She had been at the right bank but the good kid she is instead of arguing with me or saying something about my memory we just drove over to the correct bank did our banking and went about our day.

CONFESSIONS OF OTHER FATIGUED FIBROMITES

“I sprayed hairspray under both arms before realizing that it was not deodorant.”

“I put milk in the cabinet & cereal in the refrigerator.”

“I fall asleep in the shower.”

“I had to stop putting my socks on standing up. My balance has gotten really bad, but it’s mostly because I put my shoes on next, like auto pilot. Know where this is going? Socks, shoes, pants! Then I would fall over because my foot would foot would get stuck in my pants leg because I had already put my shoes on.”

“I arrived at doc appointments at wrong docs and times. But it’s rare. Once, I went for yearly check up and had absolutely no memory of having ever been there or seen the staff before but they knew me. Freaked me out because my father has advanced dementia. It never came to me. Still don’t remember them. I walked in office saying, did you move?”

“I drove to the wrong city for 1 of my medical appointments! I was about 1 hour farther out than I needed to be at their main location. Now I can’t even drive myself anymore…who knows what would happen…I would for sure fall asleep at the wheel before I made it!”

“My big one is getting home from the grocery store, and I’m so wiped out sometimes that my mind blanks on one of the bags, so something doesn’t end up in the fridge or freezer that should have. I hate when I do that!”

“I went to a hair appointment Tues. when it was actually not till Thurs.”

“I tried to put the milk in the kitchen cabinet one day. The only reason I didn’t is because it wouldn’t fit.”

“A couple weeks ago, I was sitting in the car, that I’ve had since 2013, waiting for my husband. He came back to the car to tell me something and I had no clue how to roll the window down or open the door. I sat and played with the locks, until I found the handle…lol Yes, funny, yet scary!”

“I have no more drinking glasses left. I broke them all. I would just randomly drop them. Plastic is the new glass in my household.”

“Personally I like fibro pregnancy brain duo. lol I put everything in the freezer or wrong cabinets.”

“Drove my preteen daughter to the wrong school for morning drop off….! Luckily she noticed! Haha!”

“I put my phone and umbrella in the fridge one morning.”

I have been struggling with fatigue more than usual these past few months. I will end this blog by sharing that when I began to proof read the above article it appeared to be longer than I had remembered. I found out why. I had posted each of the stories 2-3 times.

Share your stories in the comment box below.

“Wishing you sun~filled days & rest~filled nights”