Confessions of a fatigued fibromite.

What have you done due to fatigue?

I was posting things I have done because of fatigue/”fibro fog”. After sharing my stories others began to share theirs. I saw myself in everyone of their stories. I know it makes me feel better to know that I am not alone.

MY CONFESSIONS

I stood in front of my office door pushing the button on my key wondering why it was not opening my door. It took longer than I care to admit for me to realize that I had been clicking my car remote door opener.

I told my daughter to meet me at the bank. I got there and texted her telling her that I was there waiting for her. She called asking where I was. She had gone to a different bank in town. I was positive that she was at the wrong bank. In fact, she even drove over to the bank I was at meanwhile I had told the lady at the bank that my daughter was late because she had gone to the wrong bank. She arrived and we handed the teller the information for her to make the deposit. You guessed it. She didn’t have an account there. She had been at the right bank but the good kid she is instead of arguing with me or saying something about my memory we just drove over to the correct bank did our banking and went about our day.

CONFESSIONS OF OTHER FATIGUED FIBROMITES

“I sprayed hairspray under both arms before realizing that it was not deodorant.”

“I put milk in the cabinet & cereal in the refrigerator.”

“I fall asleep in the shower.”

“I had to stop putting my socks on standing up. My balance has gotten really bad, but it’s mostly because I put my shoes on next, like auto pilot. Know where this is going? Socks, shoes, pants! Then I would fall over because my foot would foot would get stuck in my pants leg because I had already put my shoes on.”

“I arrived at doc appointments at wrong docs and times. But it’s rare. Once, I went for yearly check up and had absolutely no memory of having ever been there or seen the staff before but they knew me. Freaked me out because my father has advanced dementia. It never came to me. Still don’t remember them. I walked in office saying, did you move?”

“I drove to the wrong city for 1 of my medical appointments! I was about 1 hour farther out than I needed to be at their main location. Now I can’t even drive myself anymore…who knows what would happen…I would for sure fall asleep at the wheel before I made it!”

“My big one is getting home from the grocery store, and I’m so wiped out sometimes that my mind blanks on one of the bags, so something doesn’t end up in the fridge or freezer that should have. I hate when I do that!”

“I went to a hair appointment Tues. when it was actually not till Thurs.”

“I tried to put the milk in the kitchen cabinet one day. The only reason I didn’t is because it wouldn’t fit.”

“A couple weeks ago, I was sitting in the car, that I’ve had since 2013, waiting for my husband. He came back to the car to tell me something and I had no clue how to roll the window down or open the door. I sat and played with the locks, until I found the handle…lol Yes, funny, yet scary!”

“I have no more drinking glasses left. I broke them all. I would just randomly drop them. Plastic is the new glass in my household.”

“Personally I like fibro pregnancy brain duo. lol I put everything in the freezer or wrong cabinets.”

“Drove my preteen daughter to the wrong school for morning drop off….! Luckily she noticed! Haha!”

“I put my phone and umbrella in the fridge one morning.”

I have been struggling with fatigue more than usual these past few months. I will end this blog by sharing that when I began to proof read the above article it appeared to be longer than I had remembered. I found out why. I had posted each of the stories 2-3 times.

Share your stories in the comment box below.

“Wishing you sun~filled days & rest~filled nights”

CRM. A new fibromyalgia symptom?

Originally published on www.ProHealth.com • October 22, 2016

medicineCRM. A new fibromyalgia symptom?

Well, not really. But maybe.
I know I live with CRM.

Wonder what CRM is?

Let me tell you:

Can’t Remember Meds.

Even though it’s only a matter of hours after missing my medicine that my body begins to let me know, I often forget my meds. With that lapse in memory, I start experiencing body aches, fatigue (more than usual), and headache, sometimes leading to a fever-like feeling and cold sweats. It still surprises me and I think I’m coming down with the flu, but then I’m hit with the ah-ha moment: “I forgot to take my medication.” Then it takes at least 2 dosages before I feel my “normal.”

CRM. It is ridiculous. It is completely unavoidable. Just take the medication. Right?

It isn’t always that easy. Life happens. Any form of interruption in my schedule can lead to me either taking medication late or not at all. The first thing I do every day when I wake is to take my morning dosage; my phone alarm goes off at 7:00 p.m. everyday to remind me to take my evening dosage.

If anything messes with my routine such as oversleeping, vacations, etc., I am likely to forget. In the evening if I’m busy writing, the phone rings, laundry, etc., instead of hitting the snooze alarm, I will hit the dismiss button on my phone and remember an hour later.

I’ve tried many different methods to remember to take my meds and am currently using PillSuite, a seven-compartment sorter.

Here’s how it works:

Step 1: Sort your pills (AM or PM) into the seven compartments of the sorter.

Step 2: Place one of the plastic packets over the funnel on the sorter. Tip the sorter sideways and the pills will flow easily into the plastic packets. Label the packet.

Step 3: Finally, use the sealer to seal the pill packet closed and you are done!

I don’t enjoy sorting my meds. It takes me approx. 20-30 minutes to sort 2 weeks worth of meds/vitamins. I’ve gotten lazy and do not label the pill packets which means I really don’t have any way of knowing if I have taken them or not.

There is a very easy fix to this dilemma. I can label the pill packet with the date or start using the plastic daily medicine boxes that are clearly marked by the day and am/pm.

We are creatures of habit. It is important to take medications at the same time everyday.

Tie taking your medication with a daily activity such as breakfast, brushing your teeth or going to bed.

Keep them where you will see them (out of sight – out of mind).

When you take them, visualize yourself taking the medication.

Use a calendar and place a mark on the day after you have taken your medicine.

Place post-it notes or reminders where you are certain to see them such as by your toothbrush, nightstand, car keys, etc.

Ask a family member or a friend to give you a reminder call.

Find a sorting system that works for you.

Avoid the cheap pill boxes. They usually have flimsy lids and clasps that break or wear out after a few months.

Try different ways of reminding yourself to take the medicine and keeping track that you have taken them.

Keep a backup dose of meds on hand in case you forget to take them after you’ve left the house or if you’re going to be out past medicine time.

I’ve now been using the PillSuite system for over a month, and I am so happy that I was given the opportunity to try this product. I have officially tossed the plastic containers and plan on continuing to use PillSuite.

I would love to hear how you remember to take your medicine.

Disclosure: I received the PillSuite system as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.