I CAN TOO DO IT!!! Watch me!

During a conversatation with my Daughter the other day, we started out talking about shopping. She said she would rather go to the Mall with me but that she knew I couldn’t do that. I asked her “who said I can’t”. She said that it would hurt me too much to go. I agreed, but said that it was my decision not hers.

She said like going to the Dells. Well, I went to the Dells with them and even tried the surfing. Did it hurt afterwards? HECK YA!, but it was my choice.

I even reminded her we went to Florida last February. I didn’t let Fibro or it’s evil sidekicks stop me. It slowed me down – yes. But no one missed out on any of the fun.

It is bad enough that there are days that I have to turn people down on invites, leave a party early, or excuse myself from family visitors to go to bed on time.

I have accepted these things. But, I have also seen how my family has changed as to what we can do or more accuratley what I can do in an outing.

This should be something that makes me happy ~ right? Having others worry about me?

Especially, since I have so many Fibromite friends that are still struggling to get Family and Friends to understand the pain, exhaustion and frustration of having Fibromyalgia.

Every day I still see posts asking how to explain it to others, how to make others “see” the invisible “syndrome” and understand they are not “lazy” ~ they are in pain.

I KNOW I should be happy that I have such caring family and friends ~ that they understand (most of the time).

Yet, Here I am whining over the fact that they want me to take it easy, not over do it.

Some it I am sure is because I am (okay – I will admit it) Stubborn – “not letting anyone tell me what I can or can’t do”. That has been my thinking forever but before Fibro not always my actions.

But here I am telling the World (or at least the few of you reading this), that NO WAY am I going to allow others to decide what I can or can’t do because of my Health.

I do not have a fatal condition. I have an awful “syndrome” and 9 of it’s evil sidekicks that myself and others around me have to live with the rest of my life.

Even with that said.. My most repeated saying that I tell people is that I am LIVING my LIFE.

I AM IN CONTROL ~ Fibro might win a few rounds now and again but this is my Life and I plan on Living it.

I am a Fibromyalgia Warrior ~ Living Life

Acceptance = Strength


     A few weeks ago it was our towns Homecoming week.  Our 7th grader is in the marching band for the first year (and most likely the last). We live in Northern Wisconsin and the weather had turned cold.  The high of the day was 43 degrees.  By the time the game had started the temperature was 32 with high winds making the temperature below zero with the wind chill.

I have never been a winter baby.  I hate the cold.  I have a harder time dealing with it now.

I have not attended a football game in 20+ years.  I dressed for warmth not fashion(which is hard for me to do). I layered with long johns, warm socks, winter coat, gloves, and even a hat. I didn’t realize part of game watching was to bring blankets.  You could tell those parents of the football players. They had blankets to sit on, wrap up in and lay across their legs. Then came the really good news ~ he benches are made of metal.

No matter how many layers I had on – when I sat down I was going to have one cold tush.

I tried very hard to watch the game.  My toes had frozen completely and a few of my fingers as well.  I thought it was going to take forever to get to half-time.

Once it arrived, I thought – Yes, it is almost over.  I suggested to my husband that we walk out of the bleachers and get by the fence where we would have a better view.  Cold, Sore and Stiff from sitting on the bleachers, I made my way down to the fence line.

My luck they had the high school band play first. Standing by the fence line, the wind whipping cold air.  My leg would not stop shaking.  It was uncontrollable and I could not put any weight on it.  The band kept playing…. and still no Middle Schoolers yet.  I got so bad that he said I needed to go to the car.  I needed to warm up.  I refused at first, this was probably going to be the first and last time that we would see her play in the marching band. As the minutes ticked away, I was getting worse.  I finally said I would go to the car.  He walked me back ( I would not have been able to walk back to car by myself).  He said that “you have to start realizing you can’t do everything now”, “some things you can’t do”, I kept telling him over and over again ~ “please, don’t let her know that I missed it”.. repeat, repeat.  Once we got back in the car, he ran back to see her play.  I cried and cried. Then called my Sister.  I told her what happened – she of course agreed with him then calmed me down so my daughter wouldn’t see me such a mess.

After the half time performance, they returned to the car.  My daughter, with an awful attitude because we had not let her stay for the remainder of the game.  She had definitely not dressed for the below zero weather.  My husband had told her that I was in pain and needed to go home.  At that point daughter who 80% of the time is my supporter turned into a lippy teenager.  “have to go home because YOUR in pain”.

The rest of the ride home, the two of them were silent.  I cried more uncontrollably.  Once we were home she was sent to her room.  We set in the car.  I told him I didn’t know if I was so upset because of the pain, the cold, her blunt comment, the realization that there will be things I won’t be able to do, that this is the first time I have missed something because of my health.

This is where I want to stop my feel and scream at the top of my lungs “IT IS JUST NOT FAIR”

I accept that I have Fibro and now 9 of it’s evil sidekicks.  I do my best to be positive and supportive of my fellow Fibromites.  I help others. I always have – It is me.

I follow a strict bedtime.  I watch my nutrition.  I see a Chiropractor, an acupuncturist, swim at a pool.  Do they help?  yes  Does it eliminate the pain? No

If someone were to ask me what is the worst thing about having Fibromyalgia and it’s awful sidekicks.

I would have to say that it is that I at times will have to accept the fact that there will be days that I will need to acknowledge that I have limitations.  I may need to have someone else be the Mom chauffeur,  and I may need days that I am the one that needs support.

Still today, she doesn’t know that I missed the Homecoming performance.  I know someday she will read this entry.  I hope she reads it and understands how much I love her, how much it hurt missing her play on the field and that if she takes anything from this blog – Is that I want her to always try to do her best, to be positive when faced with adversity, and to always know that no one is perfect and everyone has limitations. The true strength is knowing when to accept our limitations.

It  does not take much strength to do things, but it requires great strength to  decide on what to do.Elbert Hubbard