Fibro Ettiquette

Fibro Ettiquette

Recently my daughter was trying to be funny and waited outside the bathroom door as I was getting ready for bed. When I opened the door she did her best to startle me. It worked. If you have Fibro – I don’t have to tell you how I felt. If you don’t have Fibro – just know that since we have overactive nerve disorders – the reaction isn’t just shock. It is painful.
She is usually so good at understanding. She often is offering to save me spoons. This time I got the 12 year old eye roll and I don’t think every single second of every single day that my Mom has Fibro. My reply was “I am glad that you don’t that means I am still fighting it. But remember that even if you don’t remember every single second of every day that I have it – I don’t have a second go by on any day that some part of my body doesn’t remind me that I do”
Well, that led me to thinking –
Maybe what we should have is big flashy signs with arrows pointing to us or a rewind/delete button – oh better yet – a force field so other’s can’t touch.
I love Bill Engall – I feel this should say – HERE’S YOUR SIGN!
“HANDS OFF”
When greeting someone with Fibro – don’t touch our back, squeeze our arms.
Never sneak up or surprise us – When you startle someone with Fibro – you get on their nerves – literally.
Did that hurt? continue to touch – really ? that hurts? YES!!!

Mirror, Mirror – Yes, I own one.
You don’t look sick – Well, Looks can be deceiving and just because I am in constant pain (and all the other symptoms) – doesn’t mean I lost my ability to buy cute clothes or look nice in public.
However, I may look pain-free but I AM NOT.
“HA-HA-HA”
Yes, I can laugh and smile at the same time as wanting to cry.
We can be happy and be in pain at the same time.
We are also very good at hiding the pain with fake smiles.
“Me too!”
I forget things too – everyone does when they get older.
Ooh, I hurt so bad too – everyone does when they get older.
Trouble sleeping? me too. Everyone has trouble sleeping the older they get.
Dr. Joe G Public
It’s all in your head. You are right – my head is full of nerves and so is the rest of my body.
I read they found a cure for that.
My friend/family has it – they are fine.
You just need more rest. lesss stress.
Remember the rule – If you can’t say something nice….
Must be stress. You just need to not do so much.
WOW – that is a lot of pills. I know – It takes me 8 oz of water and 4 handfuls to have my breakfast.
How old are you? You are way too young to have that.
I don’t know do I look Psychic?
In a lot of pain? – How come? Weather? Stress?
You went to bed early? How come your still tired?
You slept in late? Why aren’t you sleeping?
Words of caution (really not a threat)
Hurry Up – or give me a look like why am I walking so slow;
“Yes – I may look fine but I am going to walk very slow across this cross walk”. Seriously, I can not walk any faster.
Our minds are foggy – Don’t laugh at us when we mix up our words or can’t get them to spill out!
My best sign isn’t my own idea – I stole it from a fellow Fibro-mite – Robin
“To the next person who tells me no pain, no gain, those will be the last words you ever speak “
Print Friendly, PDF & Email

Looking forward to hearing your comments!

%d bloggers like this: