Post positive

Post positive

I recently joined a few fibro group sites. I wanted to see what others were experiencing and how they ran their support groups. I spent the time reading what the posts were and the comments that were being made by others. I replied to a few of the comment/questions. I read some comments of some other “newbies” to these groups. They had said exactly what I was thinking. One person said that she had joined the sight looking for support and all she had been reading was negative comments and complaining.
I removed myself from the group today. I totally understand the need to have a place to vent. We (fibromites) have so many reasons to complain. I personally do not go a single day without either being in one form of pain or another, tired or foggy (and these are on my good days).
It is wonderful to have our group to talk to when we have a new symptom. We need to talk to other’s – to ask – to compare – to vent. We need to hear what they have tried to help them and if it worked.
However, along with the need to express our frustration, we need to be able to celebrate our accomplishments.
Every day my friends post on facebook what sports, activities and vacations they have done. The past year I have been able to post that I slalomed skiied, went rock climbing with Girl Scouts, horseback riding, and white water rafting. The usual response from those who do not have fibromyalgia would be to click the like sign, post a smile or a comment like “fun” or “jealous”. Post the same thing on a fibro site and the comments are completely different. Those on the fibro site would really understand how many spoons it took to do those activities. They would understand the risk or possibilities of the days of “payback” for having a little fun. They would get that there probably had to be a trade off – If I do this.. then I can’t do this or if I do this – I can expect a flare to be around the corner. We have to decide is the fun worth the cost. That shows the importance of our groups positive support for both when we are in need of a shoulder or a pat on the back.
I enjoy my Fibro Warriors ~ they are positive caring friends ~ with a virtual shouldercry on ~ they wear the cheerleader hat giving us a push when needed, and they celebrate our daily wins!
Print Friendly

Looking forward to hearing your comments!

%d bloggers like this: