Once diagnosed I went online looking for answers to my questions. I was looking for suggestions, treatments, ideas but most of all I needed to get support from those who have been there, done that and are still living it.
I joined many support groups and pages and felt relief seeing others post about the same things that I was experiencing. They were talking about their pain, fatigue, frustration, their symptoms/syndromes & diseases.
I don’t remember how many groups I have joined over the past 4 years. I have found some very positive supportive group/pages. However, I have found just as many groups that the posts were so negative. I have left many groups because of the thing I call the “ME TOO” disease. A member would post a question or a comment. Other members would begin to add comments and this is where I would see it happen. The “ME TOO” disease. It almost felt like they were trying to one up the person who had made the original post. The more I read these posts the worse I would feel. I started thinking more negatively. I was worrying about what if’s?, what’s next? creating the worst scenarios that could happen. I would comment on another members post and if I wasn’t “jumping on the band wagon” by agreeing and complaining I would be ignored or quickly corrected.
The “ME TOO” Disease is extremely contagious and in a short amount of time it can spread quickly amongst friends.
I eventually found that I wasn’t alone. It happened one person at a time. I met others who were looking for the same thing that I wanted. We were looking for a support group/page where people felt free to talk about the medical side of the illness and also how it made us feel without judgement. We wanted a place where we would feel comfortable to vent, cry, complain or celebrate an accomplishment without having someone else Jump on board with the “ME TOO” Disease. We were looking for validation, suggestions, ideas and ear and shoulder of a fellow Fibromite.
It isn’t just in support groups where you can see the “ME TOO” Disease spread. I have seen it happen in places of work and on sports teams. In our situation however that kind of negativity can lead to severe depression leading to more pain.
However, more important than the ME TOO! is the I DO!
Do you have any exercise that work? I DO!
Do you have a list of successful medications/treatments? I DO!
Do you have something that keeps it from reoccurring? I DO!
- Show understanding
- Give encouragement
- Offer suggestions
- Be Positive
- If someone says that they are a Fibro Warrior ~ Living Life Reply; ME TOO!
I am a Fibro Warrior ~ Living Life!