Take my clothes – please …. Living with Fibromyalgia and Allodynia

Imagine your worst sunburn. How did it feel when you had to put on your shirt? or have someone touch you?

It is something that I experience every day.

What causes me to feel like my nerves are trying to jump out of my skin?

Allodynia is believed to be a hypersensitivity to stimuli that would normally not cause pain. The pain can be provoked by a light touch to the skin, pressure from clothing, showering, combing or brushing your hair. Even a light breeze blowing across your skin can feel like agony. Allodynia is considered to be the result of a process called central sensitization. The pain comes from a malfunction of specialized nerves, called nociceptors. These nociceptors sense information about things like temperature and painful stimuli right at the skin.. Any sensation felt by the skin becomes painful. Two types of allodynia are tactile allodynia, which is pain caused by touch and mechanical allodynia, which is caused by movement across the skin.

The warmer I am the more my skin stings and burns, then anything touching my skin or a light breeze can send me in a frenzy,

Not only is my skin painful to the touch but my clothes cause daily pain.

I choose what I wear every day based on the level of the feeling. Clothing can cause pain all over your body. Most days my arms, hands and thighs are only affected. Today, my entire body feels like I am being attacked by pins and needles.

Other times I describe areas as feeling numb or tingly.

Most days at work you will find me wearing short loose sleeve shirts or tank top style blouses. They type of fabric plays a big part. I am more likely to look at the style of the blouse. The least amount of clothing and lightest touching is the best.

I have had to change the style of socks and shoes that I wear. If I have to wear socks I wear the shortest softest lightest ones I can find.

Everyday the minute I get home from work the shoes and socks are the first to go. I have a very loose soft pair of slippers that I put on then I change out of my work clothes and put on crop length loose pj bottoms and a very loose short sleeve top. On weekends I have light weight crop workout pants, a soft loose sports bra and a shirt that barely touches my skin at all.

Don’t even get me started on clothing tags.

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6 thoughts on “Take my clothes – please …. Living with Fibromyalgia and Allodynia”

  1. This sounds like a nightmare to me, as I’m a very tactile person 😞 I’m not sure how you manage, but wishing you all the best with managing the pain x

  2. This is a condition I knew so very little about, and can’t imagine how painful and frustrating this must be on a daily basis for you. Thank you for sharing this and bringing light to it. x

  3. I’m so sorry you deal with allodynia on a constant basis :'( Mine goes through flare/remission cycles, and drives me up the wall when it’s flaring! I can’t even imagine having that sensation 24/7. Best wishes and much love <3

  4. I HATE allydonia. I have CRPS (Complex Regional Pain Syndrome) and this is one of the worst feelings. Mine gets so bad that I can’t get socks or shoes on, or pants. I haven’t been able to wear jeans in a year. Thank you for writing this to raise awareness.

  5. Allodynia sucks! Jeans and tailored pants are a no no for me. Today i woke up with allodynia on my left wrist. Felt like it was burning and extra sensitive. Mine is all over but the worst on my thighs!

Looking forward to hearing your comments!