Journey to a Diagnosis • Originally posted on  February 10, 2018

For many people, symptoms begin after an illness or emotional or physical trauma. They  do not likely cause fibromyalgia but may trigger the onset in people who are already at risk.

If you ask most fibromites what caused their fibromyalgia, what was their “trigger” they can usually tell you. In fact, their may have been more than one. Before I was 25 I had experienced several events that could easily have triggered my fibro. I was in 2 severe car accidents, a devastating unexpected loss of my grandfather and a move away from everyone that I knew. Yet, none of those events triggered my fibromyalgia.

However, 17 years later the combination of a stressful job, unexpected family loss and a year of weekend travel with physical and emotional stress dealing with the family members estate was as they say “the straw that broke the camels back.”

It began with migraines, insomnia, lower back pain, jaw pain and body stiffness. I went to a my GP, chiropractor, dentist, radiologist, physical therapist and counselor. Each test would come back with a new diagnosis but nothing to show the why or what I could do about the increasing pain and fatigue. The worst feeling in the world is when no one believes you.  Not only your doctors do not believe you but when your own family agree with them, “It is all in your head.”  I began my own researching. I plugged in all of my symptoms and diagnosis to find out if they had anything in common. There it was, Fibromyalgia.  The more I read, the more I was certain that I had it.

I needed someone who would be willing to look at all of my symptoms and run the tests needed. I decided to see a new Doctor. I wanted a fresh start and new perspective with someone that had no idea about my previous health history.

I researched physicians in the area looking at their specialties. I found a young doctor who listened and began running blood work and every test she could. At last, she decided to send me to a rheumatologist.  Although, he was very rude and made it perfectly clear that he would not treat me he did tell me that I indeed did have fibromyalgia.

I had never been so happy to get a diagnosis in my life. Finally, someone believed me. Wouldn’t everyone else need to believe me now as well?  It gave me validation and hope.

It all made sense to me now. This is why I had all of the following: Headaches, Exhaustion, Insomnia, Chronic muscle pain, Stiffness, Fevers, Emotional rollercoasters, Anxious and Depressed, Jaw tenderness, Difficulty remembering, concentrating (Fibro Fog), Increase in urinary urgency, and feeling of swelling (without actual swelling).

I did not deal with my diagnosis on an emotional level but a cognitive level.

Now that I knew what I had I could begin my research.  I wanted to learn everything, talk to everyone who had it or knows someone who does. Thankfully we live in an era where information is at our fingertips and social media allows us to connect easily with others.

I never would have guessed that not only would this be the moment I would look back at and see what kind of person I was to become. Would I roll over and let this illness take over my life or would I stand up and fight?

The search for answers and desire for positive support led me to create Fibro Warriors Living Life. My facebook and website for others who are like me. We are trying to continue to live our lives in spite of the pain, fatigue and other “evil sidekicks” that are co-existing conditions of fibromyalgia.

Although, there are days when I feel like I am losing the battle I am fortunate that I have an army of warriors that remind me to keep on fighting.



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One thought on “Journey to a Diagnosis ”

  1. Yes, we are warriors on a trail looking for the cause of fibromyalgia only to find the symptoms are the only way to tamp down or pain and suffering. Thanks for keeping us going.

Looking forward to hearing your comments!